Keeping up with a Medicine Schedule and Doctor Appointments

Kaylee's medicine schedule changes everytime we go to a doctor and we go to some type of doctor every month if not more.

Kaylee currently takes 6 medicines in the morning and 4 medicines at night. All of them are given to her through her g-button, which is kind of nice because I am sure she would be fighting me if she had to take them orally. Her medicines rang from prevacid to calcium for her DiGeorge Syndrome to meds for her heart rate for the pacemaker. It can get really hard to keep up with all of them sometimes, especially when the amount is changing all the time.

Kaylee has many doctors on her team of specialists. She has an ENT, Pulminologist, GI, Pediatrician, Heart, and anything else they come up with that we need along the way.

Every doctor we see wants to see us more times and trying to keep up with all of their appointments along with her Therapy schedule makes for a difficult schedule to work out for work. I completely understand why some women become stay at home moms because it can get stressful trying to balance everything.