When talk began about Kaylee coming home it was decided that I would spend an entire weekend with her in the hospital to learn the ins and outs of care for her (more to what I already knew from watching). They wanted to make sure I could handle the oxygen, G-Tube Button, Meds, and everything else that came with my child's condition.
I worked hand in hand with the nurse to learn how to handle certain situations if they were to arise along with situations that were guaranteed to happen. She was amazing and I learned so many tips and tricks about staying organized with all of her supplies. There are so many little supplies such as syringes for meds, tape, and gauze to name a few. One great idea she gave me was to take a see through shoe organizer that hangs over the door and put all the little supplies in each pocket and label it. It has saved me so much time in trying to find things.
We were originally supposed to receive home care and the doctors at the hospital sent us home thinking we were going to get some extra help. Well a week or so after we got home we found out insurance was not going to cover it because her case was not that severe at that time. It was fine really because we were unsure about having a random person in our home and Kaylee really did not have that much need.
When we first walked in to the wing to get Kaylee to go home we saw a sign that said lunch celebration for Kaylee and Gavin, which was another baby that had been in there a long time, going home. That put a smile on my face. We started loading up the cart and the nurse was giving us more and more stuff just to take. Never turn down free stuff from the hospital! We took some pictures with the staff because they had literally become part of our family and we love them dearly. As we were loading Kaylee into the car seat the staff decided to present her with a poster board with a picture of one of The Incredibles signed by most of the staff giving words of encouragement to her. It was beautiful and almost made me cry, but did put a smile on my face. They also gave her a cute blanket to go over her in the carrier. Grandma Kathy was filming everything as we got ready and left. It felt so surreal that we were finally taking our little girl home, but also sad because she really did not know what home was. To her home was the room she lived in at the hospital. We loaded her up and I got to experience my first of many backseat car rides with Kaylee.
Once we got home we just kinda watched her swing and sleep. You work so hard to get her home and then once you get it it's like what do we do next. I wouldn't have my daughter any where else but home. She loves it now but was most certainly a skeptic at first. It is such a relief to have your daughter in the comfort of her home and able to just lay with her, or hold her, or playing just to see her smile. Most people don't realize how lucky they are to have that time with their children whenever they want.
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